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05 - 06 November, 2019 | London, United Kingdom

Andra Stratton

President & Co-Founder, Professional Patient Advocate & Rare Leader
Lipodystrophy United

Agenda Day 2

9:10 AM International Keynote: The US Patient Perspective on Expanded Access

  • Incorporate the patient advocacy perspective to develop a review process and formalised procedure on expanded access
  • Recognise actionable steps to optimising patient access
  • Discuss working with patient groups to help demystify pre-approval access and create community-specific resources

11:00 AM Panel Discussion: Effective Collaboration Between Manufacturers and Patient Advocates

  • Soliciting input - the rare disease patient advocates perspective on the process of accessing treatment in EMAPs
  • Understand the tools/recourses and practices to best promote awareness/education with patients
  • Discover the key challenges faced by patients seeking early access and suggested ways for medicines manufacturers to help overcoming these

Check out the incredible speaker line-up to see who will be joining Andra.

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