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22 - 24 October, 2018 | Hallam Conference Centre, United Kingdom

Shannon Burkoth


Rare Disease & Narcolepsy Advocate, Program Mentor
Rare Advocacy Movement (RAM)


11:00 AM Panel Discussion: Effective Collaboration Between Manufacturers and Patient Advocates

  • Soliciting input - the rare disease patient advocates perspective on the process of accessing treatment in EMAPs
  • Understand the tools/recourses and practices to best promote awareness/education with patients
  • Discover the key challenges faced by patients seeking early access and suggested ways for medicines manufacturers to help overcoming these


Check out the incredible speaker line-up to see who will be joining Shannon.

Download The Latest Agenda